Protect Medicaid Summer 2025
In the spring of 2025, Congress introduced the Big Bad Bill (aka, “Big Beautiful Bill). Advocacy groups across the country rallied to hold Medicaid vigils, make videos, and speak to the media about the damage the $1 trillion cuts would be to people with disabilities and others who rely on Medicaid to stay in their homes and communities, to access health care, and to live independently. The BBB passed both houses of Congress on July 3, 2025, but the fight continues. #CancelTheCuts
(videos courtesy of Caring Across Generations)
“Disabled Americans Fear What Medicaid Cuts Could Do to Them,” by Maggie Astor:
“Rob Stone, 28, a disability rights advocate in Maryland, relies on two state Medicaid programs for nursing and other assistance to manage a rare form of dystonia linked with Parkinson’s disease.
“‘I don’t want to just survive,” he said. “Medicaid helps me live a fulfilling, independent life in my community. I should be able to control my own life, just like anyone else.’”
Rob Stone in The New York Times
Photo: Rah Foard
NPR Story: 2022
Rob & I were featured in this NPR/KHN story, “Americans with disabilities need an updated long-term care plan, say advocates”
“No one will just sit down and tell me what is going to happen to my son,” she says. “You know, what are his options, really?”
RARE DISEASE DAY 2023
Photo: Rah Foard
Rob & I were featured in this Rare Disease Day story on WMAR, Baltimore: “Maryland Doctors: Be Aware of Rare Diseases.”
My essay, “Remaining Silent: The Facts,” published in APR, was listed as a “Notable Essay of 2020” in Best American Essays 2021
Rob’s Rare Disease Story
